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Finding joy: Ella's story

Ella at Ella Fest

Ella shared her story earlier this year when she was receiving care at the Hospice in Pembury for pain management and symptom control. “The support of the Hospice has allowed me to do the things I enjoy doing again. I have always enjoyed exercise, I loved CrossFit and even though I am at the Hospice now, I can still do yoga.

“They understand what’s important to me, and they help me to feel well enough to do things I enjoy, even in a small way.”

I’m grateful that the Hospice aren’t just supporting me, but my family too. They are happy coming here because they know I’m comfortable and safe, it’s a relief knowing things are made that much easier for them. They know when they come to visit me here that we will be able to make the most of our time together. The nurses can sort out my pain relief when it’s needed so I’m not left in pain for a long period.

ella with husband stewart
ella at ella fest

The team are so friendly and caring. My husband, Stewart, and I have been able to spend quality time together and do normal things that you take for granted. The Hospice brought a sofa into my room on the Ward so we could have a movie night together and we ate KFC. It’s a memory we will both cherish.”

Sadly, Ella died in July, aged just 39. We are grateful to her family for their support and allowing us to share her story in her memory.

Ella’s parents Rita and Maurice share their memories of their lovely daughter and why they are supporting Hospice in the Weald in her memory. “Ella lived life to the fullest and found value and joy in the smallest of things. She was passionate about plants and her garden and loved spending time with her family and friends. Music was another of her passions, she loved a party. When Ella received her diagnosis, she knew she wanted to make the most of her time. She was determined to live her life as she always had done despite the challenges she faced with her symptoms and pain.

“The team at the Hospice really listened to her and made time to understand what she liked, they knew her loved ones were important and that she wanted honesty.”

ella with parents rita and maurice
ella with friends at ella fest

The doctors were able to ensure Ella was comfortable and pain free, allowing her to focus on the things that mattered most to her. Ella knew she wouldn’t get to celebrate her 40th birthday but she stayed positive and decided to celebrate her life in a way that truly reflected who she was. She planned a festival – “Ella Fest” – and gathered friends and family. It was a celebration of all the things that made Ella’s life beautiful.

Ella had an amazing day surrounded by those she cherished most in her own garden. The team at the Hospice planned ahead with Ella to move her syringe driver times so she could be there that day, comfortable and pain free.

She needed to return to the Hospice for further pain management during the event but we phoned ahead and everything was ready and waiting – before you knew it we were back in Ella’s garden. It’s a cherished memory for us, seeing our daughter being celebrated in the way she deserved and knowing she was able to experience that with us.”

This Christmas, Rita and Maurice are remembering Ella by dedicating a Light up a Life star in her memory. Stars will hang on Christmas trees at the Hospices in Pembury and Five Ashes throughout December.

Light up a Life candle

Join us and remember your loved ones

Light Up a Life this winter